SYDEM RAG was set up in September 2013 to enhance patient and public involvement in Dementia research.
The South Yorkshire Dementia Research Advisory Group (SYDEM RAG) brings together those affected by Dementia to inform research. We are a committee of individuals that use our unique knowledge of living with the disease to join in the fight against it by helping researchers.
Group members have all been affected by Dementia including patients, carers and family members. We are passionate about helping researcher’s improve patient care, better understand the disease and ultimately develop new treatments.
Our main activity to advise researchers from the Sheffield Institute for Translational Neuroscience (SITraN), a state-of-the-art research centre, and researchers from Sheffield Teaching Hospitals NHS Foundation Trust involved in researching Dementia. We offer clinical and scientific researchers feedback on their research proposals, ideas to improve patient involvement and assistance in communicating their research to wider audiences.
The group holds quarterly face-to-face meetings at the Sheffield Institute for Translational Neuroscience. Researcher’s come to our meetings to directly discuss their research. SYDEM RAG has close links with the local institutions involved in Dementia care to further aid research and share this work with the wider community.
"We really appreciated the careful thought people gave to our questions, and also the time group members had spent reading materials beforehand. We are now re-designing and re-writing the materials in response to this feedback. We hope the materials will be easier to understand, and help recruit people to take part in the study"
Becky Field, Research Associate
“I would encourage everyone involved in dementia research to go along to a meeting as it gives us the opportunity to ensure the perspectives and opinions of those living with the condition are reflected in our research plans ”
Dr Julie Simpson, Postdoctural Research Associate